Welcome to the

Cincinnati Dayton

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Sharon Fritz

PKD Connect Ambassador

Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.

I have been an active member of the Cincinnati/Dayton Chapter for approximately 10 years/ I have a strong belief that through collaboration, encouragement and education, we can support all those affected by this disease and raise the necessary funds to continue the fight for treatments and a cure through research! There is so much hope for the future!

David Young

Walk for PKD Ambassador

Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!

I started my involvement with the PKD Foundation on the Patient Advisory Group which helps oversee the Patient Registry. I am new to the Cincinnati/Dayton Chapter and the Walk for PKD. I am looking forward to getting back to in-person walks as we work to raise awareness and money for the important research that the PKD Foundation is doing. If you would like to know more about the walk or to be a volunteer on the team, please reach out.

Page last updated February 2024