News and Information
A note from your Chapter Coordinator:
Let’s make 2015 a great year for the Charlotte Chapter and let’s be there for each other as we fight this disease. From time to time we will send out a S.O.S. asking for your help on PKD topics. Please let us know if you can help!
We’ve recently added several new members to the Chapter. Each individual is in a different stage of their journey with PKD. Many have mentioned that they want to get involved in helping our Chapter grow, as well as helping the Foundation’s mission. New members and current members are encouraged to email us to suggest topics for discussions, awareness events and/or other items of interest. We need to share our DIY projects and success stories. Don’t be shy! Our goal is the same – fighting for the PKD community!
SAVE THE DATE: WALK FOR PKD. November 7, 2015, Park Road Park, Charlotte. Walk Coordinator, Bob August, has hit the grounding…walking (pun intended). He is looking for volunteers to help in securing sponsors, food, beverages and more. Contact Bob at firstname.lastname@example.org to offer your assistance. Please know YOU are in control of the time you commit to helping make this Walk a success.
Charlotte members have a great opportunity fulfill one of the 31 days of PKD Challenges on March 12th. Tell your neighbors and friends to check out the Duke Energy Center in the evening. It will be ORANGE! This is to celebrate Kidney Awareness Day! This would be a great day to drop a note to members of congress asking they support kidney disease research. Or do you want to do that one March 13th to fulfill another day of the PKD Challenge?
Calling all marathoners! Please contact your Chapter Coordinator, JoAnn Villanueva, at email@example.com to discuss how to secure your spot in the half-marathons taking place throughout the U.S.A. This is a great fundraiser and the PKD Foundation is here to help!
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!
Local Events and Meetings
The Charlotte Chapter does not have any meetings scheduled at this time however, we do want to hear from you. If you would like to connect with our volunteer Chapter Coordinator, please email JoAnn at firstname.lastname@example.org.
Meetings, local public awareness and meet ‘n greet events are in the works. Continue checking the Charlotte Chapter web page! We are working on an informational conference with the National Kidney Foundation for a date in May. As soon as a date has been set, we will post the information so please check back for updates.
Charlotte Walk for PKD
The Charlotte Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Charlotte Walk for PKD!
Sign Up to Receive Information From Your Chapter
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.