Charlotte ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at charlottechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

 News and Information News and Information

 


PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

Let’s make 2015 a great year for the Charlotte Chapter and let’s be there for each other as we fight this disease.  From time to time we will send out a S.O.S. asking for your help on PKD topics. Please let us know if you can help!

We’ve recently added several new members to the Chapter. Each individual is in a different stage of their journey with PKD.  Many have mentioned that they want to get involved in helping our Chapter grow, as well as helping the Foundation’s mission.  New members and current members are encouraged to email us to suggest topics for discussions, awareness events and/or other items of interest.  We need to share our DIY projects and success stories.  Don’t be shy!  Our goal is the same – fighting for the PKD community!

SAVE THE DATE:  WALK FOR PKD.  November 7, 2015, Park Road Park, Charlotte. Walk Coordinator, Bob August, has hit the grounding…walking (pun intended). He is looking for volunteers to help in securing sponsors, food, beverages and more. Contact Bob at charlottewalk@pkdcure.org to offer your assistance.  Please know YOU are in control of the time you commit to helping make this Walk a success. 

Calling all marathoners!  Please contact your Chapter Coordinator, JoAnn Villanueva, at charlottechapter@pkdcure.org to discuss how to secure your spot in the half-marathons taking place throughout the U.S.A.  This is a great fundraiser and the PKD Foundation is here to help!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Join us for our Chapter Meet & Greets. We will meet at Waterbean Coffee, 9705 Sam Furr Road, Suite A, Huntersville, NC 28078.  Our chapter has many new members who want to connect with other PKD patients and PKD family members.  Several of you have stated you want to “get more involved” with the Chapter.  Current members are encouraged to join us as we move forward in building a strong Chapter.  Everyone is encouraged to stop in, have a cup of coffee (decaf, of course), tea and/or a morning treat and share your thoughts, concerns and ideas.

Meet & Greet events will take place throughout the Charlotte area in the coming months.  We encourage everyone to attend our first Meet & Greet to lay the ground work for the future.  If you wish to share a thought, concern or idea to assist us in planning upcoming Meet & Greets, please feel free to send an email to the charlottechapter@pkdcure.org.

Check back for dates and times!

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Charlotte Walk for PKD

         

Thank you to all who joined us for the 2015 Charlotte Walk for PKD!

We had a great time connecting with everyone. Check back soon for information on the 2016 Charlotte Walk for PKD!                          

 

 

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Resources Resources

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Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Journal article review on ARPKD research

Wednesday, Jan. 20, 12 - 1 p.m. CST

David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.

Register


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.