News and Information
A note from the Coordinator
Welcome to the Charleston Chapter for the PKD Foundation. We are looking to increase connections within the PKD community with patients, family, and the medical professions who work with us. I am excited to help the chapter as the new coordinator. I know there are always a lot of questions and desire to meet people who understand the challenges you are facing. I hope to make the Charleston chapter a welcoming environment so that we can make progress against PKD.
Best to You All,
Charleston Chapter Coordinator
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Charleston Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Sean at firstname.lastname@example.org.
Check back for meeting updates!
Charleston Walk for PKD
Nov. 12, 2016
Felix C. Davis Community Center at Park Circle
Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.