Welcome to the

Central Ohio

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Mandy Trail

PKD Connect Ambassador

Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.

My PKD story begins with my twin sister and older brother who were both diagnosed with Congenital Hepatic Fibrosis (ARPKD) at age 2 and 4 respectively. Over the years, both have developed kidney cysts as well.  

Next, my grandmother was diagnosed with PKD in her 60’s when admitted to the hospital for an unrelated reason. Since then, many family members have been diagnosed with PKD: a parent, aunt, uncle, cousins, and also me. Some family members have been on dialysis as well as transplanted. 

My mom has attended the PKD National Conventions and volunteered with our Central Ohio Chapter over the years. She recruited me to volunteer with our local chapter which led to my role as Chapter Coordinator. Most of my efforts focus on our annual Walk along with our Walk Coordinator, Marlene Yeldell. Through fundraising and supporting research, we want to be part of finding a cure for PKD., and encourage others to do the same.

Marlene Yeldell

Walk for PKD Ambassador

Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!

PKD has always been part of my life. My grandmother, father, two aunts, four uncles, and two cousins died prematurely because of PKD. I inherited PKD along with my sister, brother, two nieces, one nephew and several cousins. Two of my siblings preceded me by having living transplants from two of our siblings who don’t have PKD. I was blessed with a living kidney transplant from my brother Ed in 2014. Because that kidney was damaged by a blood clot shortly after surgery, I had a second kidney transplant five years later. My husband, Peter, was my second kidney donor in 2020, and we are grateful for our good health.

I’ve been a Central Ohio volunteer most of the years since 1997 when our group got started. I’ve served as Chapter Coordinator or Walk Coordinator many of those years. I have met wonderful people through the PKD Foundation, and volunteering gives me a sense of power over this disease. Please join me in working for a brighter, healthier future for those affected by PKD!

 

Page last updated February 2024