Annual Report

See Our Supporters

You Walk for PKD, participate in workplace giving campaigns, attend fundraising events, honor loved ones with tribute gifts, donate online, mail in checks and even run marathons to help us accomplish our mission-critical work. Generous donors like you contributed more than $8 million in fiscal year 2013. Gifts came from all 50 states, the District of Columbia and other countries. The research, advocacy, education, support and awareness the PKD Foundation offers would not be possible without you. Thank you.

Total Raised

Please note: The above figures do not include in-kind donations.

Most Donations By Country

Foundation Partners

Our Foundation Partners are made up of members of the giving societies described below.

Members of the Founders' Annual Giving Society are donors who contributed at least $1,000 throughout the course of the year. This group is made up of 761 members, who collectively gave $4,503,285.

The Lifetime Giving Society represents the Foundation's leading philanthropists. These individuals, corporations and foundations have made significant investments of at least $100,000 to the Foundation over time, and their generosity has allowed us to move closer to finding treatments and a cure. View the list of members as of June 30, 2013.

The PKD Legacy Society members have chosen to make an investment in continuing the work of the PKD Foundation through their will or other estate plans, creating a lasting legacy in the fight to end PKD. For many individuals, these contributions are the single greatest way to make a philanthropic impact and help change the course of PKD. View the list of members as of June 30, 2013.

Foundation Partners receive exclusive updates from the President & CEO and invitations to conference calls with Foundation leadership and PKD experts.

Scott Peppet makes giving to the PKD Foundation a priority because he knows it is making a difference.

Read Scott's Story

PKD Parents

Once a family with a child living with PKD reaches out to the Foundation, a volunteer from the PKD Parents Chapter contacts them for support, compassion and guidance. Families can be connected with experts and other local families and are supported in many ways through the Chapter. The PKD Parents Chapter form teams to participate in local Walk for PKDs, as well as hold local events to raise funds for the Foundation

Raised Nearly $226,579

Sara Mann and her husband Alex were overjoyed when they learned she was pregnant with twins. What they didn't know at the time was that a disease they had never heard of, autosomal recessive polycystic kidney disease (ARPKD), would steal the spotlight from what would have otherwise been the happiest day of their lives. Sara lost her infant son to ARPKD and recorded an album, Lullabies, to comfort parents of ARPKD children, and others living with kidney disease or who have lost a loved one. Proceeds go to the PKD Foundation. To purchase the album, go to iTunes or

Read Sara's Story

Workplace Giving

Supporters of the PKD Foundation contributed to our mission through workplace giving by participating in United Way campaigns, the Combined Federal Campaign (CFC) and the State Employee Charitable Campaigns (SECC).

Workplace Giving

Jill Riester and her husband, now retired but still working for the Army, continue to encourage family, friends and everyone working for the government to choose the PKD Foundation as their charity of choice for the CFC.

Read Jill's Story

Tribute Giving

Tribute giving provides the opportunity to honor a loved one or celebrate a special occasion.

Tribute Gifts

Richard Pearson chooses to honor his mother's memory with gifts to the PKD Foundation.

Read Richard's Story

Matching Gifts

Many employers sponsor matching gift programs and will match charitable contributions made by their employees, doubling or tripling the impact of their gift.

Matching Gifts

Through the matching gifts program, John Tuohy was able to raise more than $7,500 for the PKD Foundation. Click here to see if your employer matches gifts.

Read John's Story

Gifts in Kind

In addition to gifts of cash, the Foundation relies on gifts in kind, a type of charitable giving in which goods and services are given. Common gifts in kind that we receive are bottled water, food, gift certificates, advertising space and event tickets.

Gifts in Kind

Laverne Duvall's Gift: A Legacy for Future Generations

Laverne DuvallLaverne, center, with her family when she was crowned Miss Budweiser in 1956.

PKD is a disease that often devastates many members in one family. It's not unusual for several siblings to battle PKD together. This was the case with the Duvall sisters, who all inherited PKD from their father, who passed away from the disease.

Laverne Duvall was determined to change the legacy of future generations of Duvalls, as well as countless others suffering from PKD. This was made clear by her bequest of nearly $1.7 million to the PKD Foundation, the largest estate gift the Foundation has ever received. Because of her generous gift, the PKD Foundation can continue to work toward treatments and a cure for the disease that significantly impacted Laverne's family.

Read Laverne's Story

Matching Gift Challenge Exceeded2013 Matching Gift Challenge

The 2013 Matching Gift Challenge doubled donors' gifts between May 1 and June 30, and we were overwhelmed with the response! Nearly $230,000 was given by donors like you – in addition to the $100,000 of match funds from generous friends of the PKD Foundation. Nearly 1,000 supporters responded to the appeal, including more than 50 donors that gave at least $1,000. Thank you for helping us propel the research that accelerates treatments to patients.

Walk for PKDWalk for PKD Logo

The annual Walk for PKD is the signature fundraising and public awareness event for the PKD Foundation, and the largest gathering of PKD patients, family, friends and supporters; nearly 10,000 strong. More than 50 Walks occur every year in cities across the nation.

Total Raised - Walk for PKD

2012 Walk for PKD season

Trisha Muldoon became the Seattle Walk Coordinator in honor of her daughter, Sami Lynn. If you would like to volunteer for the Walk for PKD, contact us at

Read Trisha's Story

TeamFirst and Visionaries

While many people contribute to the success of the Walk for PKD, there were some who went above and beyond. Thank you to our 2012 Walk for PKD TeamFirst and Visionaries, teams that raised more than $10,000 collectively and individuals who raise more than $6,000, respectively.

View the Complete List

Run for PKDRun for PKD Logo

The Run for PKD program started in 2009 as a way for athletes to leverage their participation in endurance events into fundraising for the PKD Foundation. Runners nationwide participate in marathons or other endurance events, such as 5Ks or triathlons.

Total Raised - Run for PKD

Steve Donbach became involved in the Run for PKD after losing his daughter, Emslie, to ARPKD.

Read Steve's Story

Fundraising Events (DIY for PKD)

Our volunteers are passionate about finding treatments and a cure for PKD, and often take the fight against PKD into their own hands by organizing a local fundraiser. Through Do it Yourself (DIY) for PKD, volunteers can organize a golf tournament, plan a Cocktails for a Cure event, host a lemonade stand, throw a dinner party for PKD… the sky is the limit!

Total Raised - DIY for PKD

Rachel Kunstadt organized Broadway Sings in an effort to do something positive in regards to her father's battle with PKD.

Read Rachel's Story

Most Unique Events

Jingle Jog  Jingle Jog (Holiday 5K)

Kidney Casino  Kidney Casino (Casino Night)

Honey Fest  Honey Fest (Family-Friendly Music Festival)

Pennies for PKD  Pennies for PKD (Collecting Loose Change)

Broadway Sings  Broadway Sings for PKD (Concert Featuring Broadway Performers)

Junior Golfer  Birdies for a Cure (Golf Tournament)

ARPKD 1st Birthday ARPKD 1st Birthday (Celebrating a First Birthday)

Paint War Paint War (Paintball Competition)

Events That Raised $5,000 or More

  • Memphis Driving Home a Cure for PKD – $107,636
  • Miami Kidney Casino for a Cure – $50,712
  • Sterling Bay Benefit Bash – $42,863
  • Turpin Sisters PKD Golf – $40,002
  • Celtic Marketing Golf Tournament – $20,861
  • Ella Grace Race – $14,000
  • Kansas City Driving Home a Cure for PKD – $12,175
  • Seacoast Ride for PKD – $10,601
  • Hudson Valley Cocktails for a Cure – $9,685
  • 6th Annual Carson's Creekside Golf Tournament – $8,500
  • Delaware Music & Silent Auction for PKD – $5,559

Outstanding Fundraising Event

Organize a Fundraiser