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Other Studies
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Polycystic Kidney Disease Data Repository
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Observational
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Sponsor:
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Rockefeller University |
| Collaborators: |
The Rogosin Institute, Memorial Sloan-Kettering Cancer Center, New York Presbyterian Hospital, Temple University |
| Status: |
Recruiting |
| Age Group: |
18 years and older |
| Enrollment goal: |
300 |
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Description:
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To collect information about PKD so that investigators may fully understand its complications, including high blood pressure, heart attack and stroke. This information may also aid in the development of improved treatment strategies. |
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Contact:
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Stephanie Donahue, NP 212-746-1591 or sld9001@nyp.org |
| Website: |
NIH Study Details
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UAB Recessive PKD Research and Translational Core Center
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Observational
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Sponsor:
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National Institute of Diabetes and Digestive and Kidney Diseases |
| Status: |
Active, not recruiting |
| Age Group: |
Up to 35 years |
| Enrollment goal: |
200 |
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Description:
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To extend the ARPKD observational study; to provide a mechanism for genetic evaluation of patients with both classic ARPKD and those with unusual phenotypes of recessive PKD; to develop educational tools for physicians and patients regarding the natural history, cause, development and effects of the disease, genetic testing and clinical trials applicable to ARPKD. |
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Contact:
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Lisa M. Guay-Woodford 205-934-7308 or lgw@uab.edu
Teresa Chicana, BSN 205-934-7649 or tchacana@uab.edu |
| Website: |
NIH Study Details
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Transplant Registry: Patients Who May Require Transplantation and Those Who Have Undergone Transplantation of Liver, Kidney and/or Pancreas
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Observational
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Sponsor:
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Virginia Commonwealth University |
| Status: |
Recruiting |
| Enrollment goal: |
2,000 |
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Description:
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To make a systematic review of medical records of patients (with patient consent) in the Virginia commonwealth University Health System who have received a liver, kidney or pancreas or who may require one and to enter the data into a secure database. |
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Contact:
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Robert Fisher, M.D. 804-828-2461
Mary Baldecchi, RN 804-828-7925 |
| Website: |
NIH Study Details
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