News

A Strained Rib Cage Muscle Leads to Polycystic Kidney Disease Diagnosis for St. Louis Cardinals' Pitcher Brian Tallet

Two volunteers from the New York City Chapter have taken it upon themselves to tell the story of PKD through animation.

Bill Brazell, member of the PKD Foundation's Board of Trustees, was recently interviewed for a story in the International Business Times. In the article Brazell, a devoted proponent of the PKD Foundation and PKD research, provides a personal look at his life and experiences with the disease.

The PKD Foundation is sponsoring a full-day medical education session on ADPKD at this year’s ASN Renal Week in Denver, Colorado. This is the first time that a course on ADPKD has been offered to nephrologists that discusses not only the disease process but disease management and promising therapies.

Gary Faulkner, who was caught in Pakistan with a pistol, sword and night-vision equipment, claims he was on a "last hurrah" to kill Osama bin Laden after PKD caused his kidneys to fail.

The immunosuppressive drug sirolimus considerably improves the kidney health of patients with autosomal dominant polycystic kidney disease (ADPKD), according to a study appearing in an upcoming issue of the Journal of the American Society Nephrology (JASN).

Last December, Andrew Levey donated a kidney so his wife Roberta Falke, who has PKD, could take part in a three-way paired kidney exchange or "swap." On March 28, the Boston Globe shared their story. Click here to read the article and leave a comment.

In a free webinar presented by the PKD Foundation, we’ll help you better understand some of the complications related to ADPKD and how they can be recognized and managed.  Some are relatively easy to distinguish and keep an eye on.  Others require a more specific diagnosis and care, but the benefits can be life saving.

Children and young adults between the ages of 8 and 21 with ADPKD and normal kidney function are eligible for the research study at the University of Colorado in Denver. The study is exploring the use of two medications, pravastin and lisinopril, to slow the growth of cysts in PKD patients. Researchers there believe that early intervention in young people may help preserve kidney function and avoid complications from PKD in later life.