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Seattle Man with PKD Captures the Lighter Side of Sealife
November 06, 2009 |
Inspiration
Bruce Yates is an investment manager by day, underwater photographer by night, and eternal optimist by nature. So it should come as no surprise that only hours removed from his kidney transplant at the University of Washington Medical Center, he was his usual cheerful self, only with an extra dose of gratitude added for good reason.
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Wishes Do Come True
October 16, 2009 |
Inspiration
On September 29 – her eighth birthday – Quinn received a life-saving kidney transplant. Now her miraculous story will be shared with the world on NBC’s Today Show. The story was supposed to air the morning of Thursday, Oct. 15 but has been postponed. The new date will be announced as soon as it's available.
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NY Times Column Highlights PKD Family
October 05, 2009 |
Advocacy
PKD received worldwide exposure today, Sunday, Oct. 4, as the topic of a column in the New York Times. Nicholas D. Kristof, a two-time Pulitzer Prize winner, wrote about a Dallas father with PKD who needed a kidney transplant. His two sons, both in their 20s, wanted to donate but feared if tests confirmed one or both had PKD, they’d risk their shot at health insurance.
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ARPKD Webinar Highlights Advances, Offers Hope
October 01, 2009 |
ARPKD , Tips , Education
For families faced with an Autosomal Recessive Polycystic Kidney Disease (ARPKD) diagnosis, gathering as much information as possible is key to dealing with the disease. Those who watched the live webinar on ARPKD got an outstanding education from ARPKD expert Lisa Guay Woodford, MD, of the University of Alabama Birmingham.
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H1N1, the Flu and the Kidneys
September 21, 2009 |
Tips , Education
People who have had a kidney transplant and are on immune-suppressant medication may be more prone to the effects of any flu virus. Research shows the flu vaccine is less effective in generating antibody protection in people who have had kidney transplants in the past six months.
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PKD Foundation Makes Final 8 in Ad Contest
August 31, 2009 |
Events
Intel recently sponsored the “Vote for a Cause” Facebook application in which non-profits competed for $50,000 in co-branded online advertising. Relying purely on user votes to advance each round, the PKD Foundation advanced to the final 8.
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Dr. Germino Named Deputy Director of NIDDK
July 01, 2009 |
Philanthropy , Events
Gregory G. Germino, M.D., an expert in inherited kidney disease who has served on the PKD Foundation’s Scientific Advisory Committee, spoken at PKD National Conventions and received an international award for excellence in PKD research, was named Deputy Director of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in May.
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Tolvaptan Not Yet Approved to Treat PKD
May 19, 2009 |
Research & Medicine
The FDA approved Tolvaptan (Samsca®) for use as a treatment for hyponatremia (low level of salt in the blood) on May 19, 2009. Tolvaptan works by blocking the receptor for vasopressin (anti-diuretic hormone) which results in the production of very dilute urine leading to correction of low levels of salt in the blood.
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