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Wishes Do Come True
October 16, 2009 |
Inspiration
On September 29 – her eighth birthday – Quinn received a life-saving kidney transplant. Now her miraculous story will be shared with the world on NBC’s Today Show. The story was supposed to air the morning of Thursday, Oct. 15 but has been postponed. The new date will be announced as soon as it's available.
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NY Times Column Highlights PKD Family
October 05, 2009 |
Advocacy
PKD received worldwide exposure today, Sunday, Oct. 4, as the topic of a column in the New York Times. Nicholas D. Kristof, a two-time Pulitzer Prize winner, wrote about a Dallas father with PKD who needed a kidney transplant. His two sons, both in their 20s, wanted to donate but feared if tests confirmed one or both had PKD, they’d risk their shot at health insurance.
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ARPKD Webinar Highlights Advances, Offers Hope
October 01, 2009 |
ARPKD , Tips , Education
For families faced with an Autosomal Recessive Polycystic Kidney Disease (ARPKD) diagnosis, gathering as much information as possible is key to dealing with the disease. Those who watched the live webinar on ARPKD got an outstanding education from ARPKD expert Lisa Guay Woodford, MD, of the University of Alabama Birmingham.
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