News

What’s for dinner? More than 50 million Americans are affected by – or at risk for – chronic kidney disease (CKD), and the number continues to multiply. While there is no cure, nutrition is one way families can fight CKD.

600,000 Americans who suffer from polycystic kidney disease (PKD) and their families stand to benefit from a genetic discrimination ban, signed into law today by President George W. Bush. The Genetic Information Non-Discrimination Act (GINA) will largely stop employers and insurance companies from collecting genetic information or using such data for hiring, firing or setting insurance premiums. 

Votes cast for comedian Rodney Carrington in the 2008 CMT Awards will now help fund research for one of the most common, life-threatening genetic diseases. Carrington won the award for “Best Supporting Character in a Video.” This year, along with the coveted award, the network agreed to make a donation to a charity of choice on each winner’s behalf. CMT had originally designated $2,500 for each charity, but executives with the network decided to double that amount to $5,000 for each winner.

Ten years after Jim Brewster’s death from polycystic kidney disease, his brother, Jesse, and other bay area musicians will perform a benefit concert to help fund research to find a cure for PKD.

Marking National Kidney Month, Wisconsin Senator Herbert Kohl was awarded the PKD Foundation’s Congressional Leadership Award, for his efforts on behalf of polycystic kidney disease (PKD) patients and their families.

Cast a vote for Comedian Rodney Carrington in the 2008 CMT Awards, and you could help fund research for one of the most common, life-threatening genetic diseases. Carrington is nominated as a finalist in the “Best Supporting Character in a Video” category. This year, along with the coveted award, CMT will donate $2,500 to a charity of choice on each winner’s behalf.

Seventy advocates from across the country gathered in Washington, D.C., this month to participate in the first-ever “PKD Champions United on the Hill” event. Their message to Congress is simple, support increased PKD research funding and other policies beneficial to the 600,000 Americans living with PKD.

“Polycystic Kidney Disease (PKD) research can serve as a model when setting standards to find treatments or cures for other serious, life threatening diseases,” said PKD Foundation Board Member and PKD patient, Michael Haggard, Esq. Testifying before the U.S. House Appropriations Subcommittee for Labor, Health and Human Services, Education and Related Agencies today.

12.5 million people around the world have three letters in common: PKD. You may not even know what PKD is. These people around the globe hope you’ll find out during National Kidney Month, March 2008.

The PKD Foundation is proud to have received a four-star rating from the non-profit oversight group, Charity Navigator, for a second consecutive year. This is the organization's highest rating for non-profits in regard to sound fiscal management.