News Releases
Media Contact
For media information and requests, please contact Jennifer Robinson at jenniferr@pkdcure.org or 913-768-0580.
Sign Me Up for PKD E-News.
2008
PKD Patients Applaud Presidential Signing of Genetic Discrimination Ban
May 21, 2008
Carrington Wins CMT Award; Network Donates $5,000 to PKD Foundation
April 16, 2008
Bay Area Musician to Honor Brother With Benefit Concert
March 21, 2008
Senator Herb Kohl Honored For Efforts to Raise PKD Awareness
March 20
CMT Award Could Generate $2,500 Donation to PKD Foundation
March 19, 2008
PKD Foundation Celebrates National Kidney Month With United on the Hill Event
March 17, 2008
Board Member and PKD Patient Testifies Before Congressional Subcommittee on World Kidney Day
March 13, 2008
PKD Foundation Receives Highest Rating from Independent Charity Evaluator
March 11, 2008
Stowers Institute Receives PKD Foundation Research Grant
February 19, 2008
Patients United to Raise Awareness of PKD for National Kidney Month
February 14, 2008
$4 Million Approved to Fund PKD Research in 2008
February 8, 2008
Tulsa Boat Sale to Benefit PKD Patients
January 28, 2008
PKD Foundation National Walk Manager Donates Kidney to Phoenix Volunteer Walk Coordinator
January 16, 2008
2007
Bill to Close Legal Loophole in Paired Kidney Donations Passes U.S. House and Senate
December 11, 2007
Harvard Alumna Releases CD to Benefit Thousands of PKD Patients, Including Her Twin Daughters
December 5, 2007
Department of Defense Includes PKD Research Among Peer Reviewed Funding Projects for FY 2008
November 19, 2007
Senate Version of Bill to Extend Medicare Coverage of Immunosuppressive Drugs Could Benefit PKD Patients
November 13, 2007
Patients and Physicians Flock to Dallas for National Convention on PKD
October 28, 2007
Worldwide PKD Clinics List Now Available Online
October 15, 2007
Baltimore Baby Travels to Pittsburgh for the Gifts of Life
September 14, 2007
PKD Awareness Week Resolution Passes
September 7, 2007
Bill to Extend Medicare Coverage of Immunosuppressive Drugs Could Benefit PKD Patients
August 28, 2007
Senate Resolution Would Raise Awareness of Worst Genetic Disease You've Never Heard Of
July 31, 2007
FDA, PKD Foundation & Pharmaceutical Companies Discuss Providing Life-Saving Treatments to PKD Patients
March 13, 2007
PKD Patient Creates Computer Program to Help Other Patients Find Kidney Donors
February 14, 2007
Patients Unite to Raise Awareness of World's Most Common, Life-Threatening Genetic Disease - Do You Know About PKD?
March 1, 2007
UNOS Changes Could Leave Patients Waiting for Kidney Transplants
February 9, 2007
PKD Foundation Urges Passage of Genetic Discrimination Ban
January 19, 2007
2006
Kansas City Non-Profit Receives $5,000 Gift from Royals Charities and Glass Family
December 20, 2006
Winners Announced for Third Annual Lillian Jean Kaplan International Prize
December 13, 2006
5 Tips for Year-End Charitable Giving
December 12, 2006
PKD Foundation Receives Highest Ratings from Independent Charity Evaluator
December 6, 2006
Four Brothers, Two Kidney Transplants: How a Four-Way Organ Swap Could Save Lives in Seattle & Yakima
September 22, 2006
United States Senate Declares September 10-16 "National Polycystic Kidney Disease (PKD) Awareness Week"
September 8, 2006
Two Clinical Trials Test Drug's Ability to Fight Life-Threatening Genetic Disease
July 20, 2006
Key Markers for Treatment of Polycystic Kidney Disease (PKD) Could Fast Track "Designer" Drug Therapy
May 18, 2006
10-Year-Old Brandon Shafer and Teacher Patsy Donahue Go Back to School After Successful Kidney Transplant Surgery
May 12, 2006
10-Year-Old Brandon Shafer Going Home After Kidney Transplant;
Donor Was His Fourth Grade Teacher
May 9, 2006
Blue Valley Students, Inspired by Teacher, "Act Out" to Raise Money for Polycystic Kidney Disease Research
April 21, 2006
PKD Foundation Seeking Applications for Research Funding
April 14, 2006
Deadline Approaches for "Hope on the Hill" Early Registration
April 14, 2006
Nominations Accepted for Third Annual Lillian Jean Kaplan International Prize
April 6, 2006
PKD Research Success Story Can Serve as Role Model for NIH
March 30, 2006
Little Girl Makes Big Impact on Life-Threatening Genetic Disease with Her First Birthday Party
March 26, 2006
Widely-Available Drug May Help Fight World's Most Common, Life-Threatening Genetic Disease
March 20, 2006
State Representative Juggles Public Life, 7 Children
And World's Most Common Life-Threatening Genetic Disease
March 19, 2006
First Day Of School Brings New Hope For Kindergartener
With Life-Threatening Genetic Disease
March 12, 2006
America's "Kidney Idol" Inspires With Her Fight Against
World's Most Common Life-Threatening Genetic Disease
March 5, 2006
"Human Guinea Pig" Hopes to Help Find a Cure For PKD
March 1, 2006
Possible Treatment For World's Most Common, Life-Threatening
Genetic Disease Receives 'Fast Track' Status From Government
February 23, 2006
Research Experts Come Together To Discuss Similarities Between Polycystic Kidney Disease and Tuberous Sclerosis
February 17, 2006
More Than $3.7 Million In Research Approved to Find Cure
For World's Most Common Life-Threatening Genetic Disease
February 1, 2006
Polycystic Kidney Disease: NIH and PKD
Foundation Launch HALT-PKD Treatment Trials
January 24, 2006
First Patients Register For Drug Trials To Halt
World's Most Common Life-Theatening Genetic Disease
January 23, 2006
America's 'Kidney Idol' Inspires With Her Fight Against
World's Most Common Life-Threatening Genetic Disease
January 17, 2006
Mayo Clinic Researchers Find Gene Linked To World's
Most Common Life-Threatening Genetic Disease
January 12, 2006
2005
5 Tips For Year-End Charitable Giving
December 9, 2005
PKD Foundation Co-Founder Receives Top Honor For Research
December 9, 2005
Algerian President Could Have PKD
December 9, 2005
PKD Research Receives Boost From $5.5M Grant
to University of Kansas Medical Center
November 1, 2005
PKD Foundation Co-Founder Earns Top Honor For Research on Polycystic Kidney Disease (PKD)
October 17, 2005
PKD Research Receives Boost With $100,000 (US) Prize
June 23, 2005
ARKPKD Gene Discovery
April 27, 2005
2000 - 2004
Gene For Liver Ailment Linked to Polycystic Kidney Disease Identified
September 21, 2004
Television producer documents her own story about surviving
kidney failure over and over again
December 10, 2003
Drug OPC31260 Slows Cyst Production
September 22, 2003
Mayo Clinic Researchers Uncover Linkage Between Two Forms Of PKD
September 18, 2003
Top PKD Researchers Honored with International Prize
May 1, 2003
Cilia May Hold The Key To The Mystery of Polycystic Kidney Disease
January 27, 2003
Gene For Liver Ailment Linked to Polycystic Kidney Disease Identified
January 22, 2003
Clinical Trials Network Established to Study Potential
Treatments for PKD
September 3, 2002
Running Legend Bill Rodgers to Serve as Honorary Chairman
for the Second Annual Walk for PKD
August 14, 2002
Calcium Channel Short Circuit May Trigger PKD
March 1, 2002
Polycystic kidney disease gene product impairs intracellular calcium release
February 19, 2002
Roundworms provide clues to human kidney disease
September 23, 2000
PKD gene advancement
June 1, 2000
Study offers hope for treating life-threatening kidney disease
January 12, 2000