News

PKD Foundation July eNewsletter

Welcome to the PKD Foundation’s July E-News! We’ve streamlined our content to provide more information important to helping you take charge and take action in your journey with PKD.

Connect

Kansas mother Nicole Harr is doing what she can to stop PKD from affecting future generations. You can join her by registering and fundraising for the Walk for PKD! PKD patients and loved ones across the country are reaching out to family and friends to raise money and awareness for PKD. Join Nicole and thousands nationwide. Get started now! Learn more about Nicole's story and create a video to tell the world: "PKD stops with me!"

You can also raise money and awareness for PKD - and enjoy a little magic while you're at it - by joining the Run for PKD team taking part in the Walt Disney World Marathon and Half Marathon January 8-9, 2011, in Lake Buena Vista, Fla. Learn more today!

Advocate

As a constituent, you hold the power to make a difference - without leaving your state! This August, we invite you to meet with your representatives and senators while they're back home on recess from Congress. The August recess is a perfect opportunity to meet with lawmakers, who are so often busy and distracted while in Washington, D.C. Now is your chance to share your personal story, build lasting relationships and educate your members of congress about PKD. Learn more and find tools to help you get started.
 

Learn

For the first time, you can learn about heart disease and cardiovascular complications related to PKD - straight from medical experts who can answer your questions in person - at the National Convention on PKD. The convention is coming up soon - August 6-8 in San Diego - so sign up today!

Another great opportunity to learn is the newly expanded ARPKD Learning Center! Featuring answers to all your most important questions, the ARPKD Learning Center is a must stop for all families of children with cystic kidney disease. A few sample questions include: What is the impact of CHF? How often will my child need to see a doctor? Will my child develop at a similar pace to other children? What kinds of emotional issues might my child experience? Visit the ARPKD Learning Center today!
 

Polycystic Liver Disease (PLD) expert Dr. Marie Hogan from the Mayo Clinic recently presented an excellent webinar on the disease and it’s connection to PKD. If you missed this – or any of our webinars – you can watch the recorded version anytime. Visit our archives at: http://www.pkdcure.org/tabid/1572/Default.aspx