Living with PKD

PKD patients still have a life to live – despite their diagnosis.   Keeping the quality of life high is a top priority.  This section deals with issues such as insurance, exercise, nutrition, family, work and caregiving to help keep you healthy and in a positive state of mind.

 
 
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Health Insurance and Medicare

The PKD Foundation strives to provide our constituents with information to help them make well-informed choices about managing their disease and living with PKD.  We’ve developed a list of the most common questions and concerns regarding private health insurance and Medicare. Learn more here. 

 

New! View an updated list of frequently asked questions regarding the Genetic Information Non-Discrimination Act (GINA) here.

 

For Caregivers

Below are several resources designed specifically for those taking care of a loved one with PKD:

Webinar: Understanding Loss and Managing Grief

Article: Taking Care of Ourselves: Self-care for the Provider

Article: Caregiver Stress and PKD

 


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Common Nutrition Questions

 


 

Common Family & Lifestyle Questions

 

Quick Notes on PKD: Pregnancy and PKD

 

 

 
©2010, PKD Foundation  · The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.