|
|
MINNESOTA CHAPTER - Providing Hope and Support
With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to raise find a treatment and cure for PKD.
Chapter Coordinator: Gary DeGrande MinnesotaChapter@pkdcure.org
If you would like to contact the Minnesota Chapter by phone, please call 1-800-PKD-CURE.
|
Connect with other PKD patients and families in your area.
Our Chapter meets on the second Tuesday of every month at the Roseville City Hall Maintenance Building in the Paper Birch room, 2660 Civic Center Drive in Roseville. Each meeting starts at 6:30 p.m. and goes until 8:30 p.m. (Any changes to this schedule will be emailed to those of you on the Minnesota Chapter email list. If you are not on that list or if you have any questions, please call 1-800-PKD-CURE and ask to speak with Gary, Minnesota Chapter Coordinator.)
Come join us!
Directions:
- From the North, of Roseville, exit I-694 on Lexington Avenue South. Turn right on County Road C. Take another right onto Civic Center Drive.
- From the South, of Roseville, exit Highway 36 on Lexington Avenue North. Turn left on County Road C. Take a right onto Civic Center Drive.
- As you start up the incline, you will see City Hall and the parking lot on the right. The maintenance facility entrance is on your left. There is a blue sign at the main entrance that will identify the building.
Join in a variety of fun events.
Join us early for 8:30 AM registration, and you won’t be disappointed. Coffee from Caribou Coffee along with breakfast breads from Breadsmith, Great Harvest Bread Company and Whole Foods Market will great you when you arrive. At the bandshell, emcee Michele Jansen, station manager at KBEM/88.5 FM Jazz, will warm up the crowd as we enjoy breakfast and live jazz. The Walk will begin at 10:00 AM. Thanks to the continued generosity of the Edina Lions Club, we will have hot dogs, bratwurst, chips and drinks waiting for us after the Walk – FREE for all registered Walkers. We’ll have music to entertain us and prizes will be awarded at this time.
Our goal is to raise $200,800! Our stretch goal is to raise $236,283. Why such a specific amount you ask? The Twin Cities Chapter has raised $763,717 in the last 10 year under the direction and leadership of Gary DeGrande. The Walk would like to round that number up so that when Gary retires from his post as Chapter Coordinator the chapter will have raised a total of $1,000,000!
NEW THIS YEAR: AUCTION FOR TIME IN A HOME IN FRANCE AND A HOME IN THE DOMINICAN REPUBLIC!
We've decided to try something new this year. Bids are now open for two weeks in a cozy country cottage near Paris and one week in a four bedroom home in the Dominican Republic. Details on both homes are at www.VRBO.com: ID 131432 for the French home and ID 148384 for the Dominican Republic home. Check them out; these homes provide unique vacation opportunities!! The opening bid for each is $1000, with subsequent bids at $500 increments. All of the winning bid goes directly to the PKD Foundation. Interested? For details, contact Gary at pkdmnchapter@comcast.net or call 651 653 3958. Spread the word to your traveling friends!
Check out videos from the 2007 Walk for PKD
Special thanks to Evan Johnson and his students at UW-River for this generous contribution.
|
|
National Convention on PKD - Summer 2009
The National Convention on PKD is the only opportunity, worldwide, for PKD patients, their families and and medical professionals to learn about PKD and connect with others in the PKD community.
In 2009, the convention will be held in two locations:
Chicago, IL and San Diego, CA
Visit www.pkdcure.org for more information!
|
Bowling for PKD has been a great cooperative fundraiser with SW Minneapolis High School for the past three years. On the last day of school, before Christmas break, students do a bit of fundraising and are rewarded with a half day of bowling at donated alleys near the school. There are no costs involved and we have raised $8,500 (2005-2007) while helping raise awareness of PKD in the community. Special thanks to Ed Roche at SW Mpls High School for his enthusiastic help.
Perhaps you have ideas on how to extend these fundraisers into other surrounding schools? Or maybe you have your own ideas for special events? If so, we would be happy to listen and help you. Contact Gary (see contact information above).
Learn More about PKD.
Download our Summer 2008 Chapter Newsletter.
Make a difference in the lives of 12.5 million people.
There are jobs for everyone, big and small. Just contact us at MinnesotaChapter@pkdcure.org to find out how you can make a difference in the lives of 12.5 million people!
Many of you work at companies with "charitable opportunities" that we may not be aware of. If you donate to the PKD Foundation, be sure to take advantage of matching contributions. But beyond that, some companies have volunteer groups who might be interested in working with us. Some companies hold non profit awareness days and we would be happy to participate. Some of you may be able to help us with company sponsorship of events like the Walk for PKD or Golfing for PKD. If you have any ideas in this area, please contact Gary (see above contact info).
A Message about our Chapter.
The Minnesota Chapter is an active and growing chapter. We are fortunate to have received some awards over the past years, including "Outstanding Chapter" from the PKD Foundation and "Heart of the Event" from Minnesota Monthly magazine. We have a good group of dedicated volunteers, a mix of all ages, passionate about our mission. We welcome you to join us. Together we are making a difference in the lives of those affected by PKD, especially future generations!
Working for a Cure!
Gary De Grande
Minnesota Chapter Coordinator