 |
ST. LOUIS CHAPTER - Providing Hope and Support
With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to raise find a treatment and cure for PKD.
Chapter Coordinator: Reed Shafer - StLouisChapter@pkdcure.org
If you would like to contact the St Louis Chapter by phone, please call 1-800-PKD-CURE.
|
Connect with other PKD patients and families in your area.
Our next meeting will be on Sept 15th to complete our PKD Walk preparations. Please call Reed at 314-517-1161 for details on the location of the meeting and include your call back number or email address.
Join us for our regular St. Louis Chapter Meetings. We hold our Chapter meetings on the second Monday of each month at 7:00 p.m.
Our "Wall of Information" at each meeting features books and articles abut the best ways to live with PKD. Each Chapter meeting is an opportunity to meet others like yourself, who want to learn more and work for a cure.
|
Dates in 2008
|
Location
|
|
October 13th, 2008
November 10th, 2008
December 8th, 2008
|
World Trade Center, Room 1013
121 South Meramec
(corner of Meramec and Bonhomme)
Clayton, MO 63105
|
Join in a variety of fun events.
2nd Annual Wine and Cheese Tasting: After the Walk for PKD, prepare for our fun, festive event with our 2nd Annual PKD Wine and Cheese tasting on December 4th from 7:00pm to 9:00pm. The Wine and Cheese Place has once again offered to host this very enjoyable and worthwhile event. Join us for a sampling of over 25 wines from around the world and a silent auction. For more information please contact briannnne@yahoo.com.
December 4th, 2008 7:00pm-9:00pm
The Wine and Cheese Place; 7435 Forsythe Blvd.; Clayton, MO.
|
|
National Convention on PKD - Summer 2009
The National Convention on PKD is the only opportunity, worldwide, for PKD patients, their families and and medical professionals to learn about PKD and connect with others in the PKD community.
In 2009, the convention will be held in two locations:
Chicago, IL and San Diego, CA
Visit www.pkdcure.org for more information!
|
Learn More about PKD.
Our March meeting was very rewarding thanks to the panel of transplant recipients, Mr. Barry, Mr. Denny Coleman and Mr. Tim Bischof. Each of them were able to discuss their disease and relate their experiences before, during and after their transplants. Since their transplants were spread over the time range of almost 20 years, the changes in procedures, medicines and several other ramifications were intriguing. They provided inspiration for all of us with the medical imporvements in the last few years. For more information, please contact the St. Louis Chapter at StLouisChapter@pkdcure.org.
Check back often for more educational opportunities!
Make a difference in the lives of 12.5 million people.
There are jobs for everyone, big and small. Just contact the us at StLouisChapter@pkdcure.org to find out how you can make a difference in the lives of 12.5 million people. Volunteering is a fun and rewarding experience and we need you help!