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ORLANDO CHAPTER - Providing Hope and Support
With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to raise find a treatment and cure for PKD.
Chapter Coordinator Needed: Contact Cindy LeBlanc at Cindyl@pkdcure.org or by phone at 404-660-7915 if you are interested.
The Chapter Coordinator would ideally have skills in leadership, organization, motivation and fund raising and be available to stay in the job at least two years. In return for your hard work, the PKD Foundation offers annual training, support from national/regional staff, materials, a Coordinator Handbook, suggestions and a network of others for idea-sharing. A detailed job description is available.
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Walk for PKD Final Totals.
The 2008 Orlando Walk had a wonderful year. Did you know that you can still fundraise for the Walk until November 9th? Check back for updates on our final totals!
View photos of our 2007 Orlando Walk for PKD here!
Connect with other PKD patients and families in your area.
Currently we do not have any meetings planned for the near future, if you are interested in starting or attending a meeting please contact Cindy LeBlanc at Cindyl@pkdcure.org or by phone at 404-660-7915.
Learn More About PKD.
Webinar on PKD: "Basics of PKD"
The PKD Foundation hosted its first webinar Tuesday, October 14th. This free webinar “Basics of PKD” is now avaliable for everyone to view. The presentation was conducted by Dr. Ron Perrone, Associate Chief, Division of Nephrology of Tufts Medical Center (Boston) and Chair of the PKD Foundation Scientific Advisory Committee.
This was the first in a series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease. For more information on this and other webinars please click HERE.
Join in a variety of fun events.
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National Convention on PKD - Summer 2009
The National Convention on PKD is the only opportunity, worldwide, for PKD patients, their families and and medical professionals to learn about PKD and connect with others in the PKD community.
In 2009, the convention will be held in two locations:
Chicago, IL and San Diego, CA
Visit www.pkdcure.org for more information!
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We have many great events planned for 2008. Check back often for updates!
Make a Difference in the lives of 12.5 million people.
There are jobs for everyone, big and small in the Central Florida Chapter if your are interested in getting involved, please contact Cindy LeBlanc at Cindyl@pkdcure.org.