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Fighting PKD Together

Since 1982, passionate patients have inspired and supported the PKD Foundation’s efforts to fight PKD. Together, we’ve advanced basic PKD research into PKD drug development. Treatments for PKD are finally within reach! Now, more than ever, we need to unite as a community - join us in this unfinished fight.

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Wishes Do Come True
October 16, 2009 | Inspiration

On September 29 – her eighth birthday – Quinn received a life-saving kidney transplant. Now her miraculous story will be shared with the world on NBC’s Today Show. The story was supposed to air the morning of Thursday, Oct. 15 but has been postponed. The new date will be announced as soon as it's available.

NY Times Column Highlights PKD Family
October 05, 2009 | Advocacy

PKD received worldwide exposure today, Sunday, Oct. 4, as the topic of a column in the New York Times. Nicholas D. Kristof, a two-time Pulitzer Prize winner, wrote about a Dallas father with PKD who needed a kidney transplant. His two sons, both in their 20s, wanted to donate but feared if tests confirmed one or both had PKD, they’d risk their shot at health insurance.

ARPKD Webinar Highlights Advances, Offers Hope
October 01, 2009 | ARPKD , Tips , Education
For families faced with an Autosomal Recessive Polycystic Kidney Disease (ARPKD) diagnosis, gathering as much information as possible is key to dealing with the disease. Those who watched the live webinar on ARPKD got an outstanding education from ARPKD expert Lisa Guay Woodford, MD, of the University of Alabama Birmingham.

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Cure of ADPKD by selection for spontaneous genetic repair events in Pkd1-mutated iPS cells - PhysOrg Fri, 10 Feb 2012 07:17:47 -0500 Here we demonstrate restoration of a genomic mutation heterozygous for Pkd1 (polycystic kidney disease 1) deletion (Pkd1(+/-) to Pkd1(+/R+)) by spontaneous mitotic recombination. Notably, recombination between homologous chromosomes occurred at ...