Cincinnati/Dayton ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at cincinnatidaytonchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

Walk for PKD Walk Season is Here!

Join us for your local Walk for PKD and be the difference in 2015!

Register Today!

 


PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!


Make a Difference in the Lives of Millions of People

We are looking for volunteers to help with some small duties to keep our Chapter growing, and raise PKD awareness in our area. 

  • Contact the Kidney Foundation of Cincinnati to find out if we can have a booth at their Walk on June 1.
  • Spread the word about the Foundation's Run for PKD program. Visit runforpkd.org for more information and current team opportunities.
  • Invite friends and family to like our Chapter's Facebook page to increase awareness and fundraising efforts.

Help is always welcome in these following areas as well:

  1. Keeping the Chapter aware of what's happening in Washington, DC. It's easy with Foundation emails.
  2. Working on the Walk for PKD 2015, the signature fundraising event for the PKD Foundation.
  3. Putting information about PKD in your doctors' offices.
  4. Speaking in front of groups speak about PKD at service groups like Kiwanis or Sertoma. These groups usually have a speaker at their monthly meetings, and this is an easy way to help spread the word about PKD. We can supply you with a script, PKD handouts and materials.

Please contact Deborah Watson at cincinnatidaytonchapter@pkdcure.org if you would like more information or to volunteer for one of these jobs or one that you would like to create which uses your talents for the Chapter.

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 Kroger Community Awards Program

Don't forget to re-register to earn money for the foundation every time you shop. It must be done every year. See below for more information.

Follow these steps:

  1. Be sure to have your Kroger Plus Card handy when registering with Kroger.
  2. Go to http://www.krogercommunityrewards.com
  3. Click on Sign In/Register
  4. If you are a brand new online customer (which almost everyone is), you must click SIGN UP TODAY in the new customer box.
  5. Sign up for a Kroger Rewards Account by entering zip code, clicking on your favorite store, and entering your e-mail address, creating a password and agreeing to terms and conditions.
  6. You will then get a message to check your email Inbox. Click on the link within the body of that email to have your browser go to the next signup webpage in the process.
  7. Click on My Account and use your email address and password and proceed to the next step.
  8. Click on Edit Kroger Community Rewards information and input your Kroger Plus Card number or your alternate id. It is the long number under the Bar Code on the back of the Kroger Plus Card.
  9. Update or confirm your information.
  10. Enter PKD. Select organization from list and click on confirm.
  11. To verify you are enrolled correctly, you will see PKD's name on the right side of your information page.
  12. If you use your phone number at the register (instead of a card), you can call (877) 576-7587  to get your Kroger Plus Card number.
  13. When you shop, please swipe your registered Kroger Plus Card or use the phone number that is related to your registered Kroger Plus Card for your purchases to count for credit.

Tips:

  • You must have an email address to apply.
  • Once you have successfully signed up, your receipts from the store will say a donation was made to Cincinnati/Dayton PKD Chapter. If this is not on your register receipt you are not signed up properly and should try to re-register.
  • For help please contact Peggy Burwinkel at 859-496-7051

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Calendar Local Events and Meetings

Meeting Chapter Educational Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

If you have any questions concerning our support meetings or would like to connect with our Chapter, please email us at cincinnatidaytonchapter@pkdcure.org  

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PKD Research Lab Tour - June 14, 2015

Members of the Cincinnati/Dayton chapter of the PKD Foundation were introduced to basic and clinical PKD research at Cincinnati Children's Hospital Medical Center and the University of Cincinnati College of Medicine.  Dr. Steve Kleene explained how calcium channels in renal cilia could influence the development or repair of cysts.   Dr. Brian Siroky spoke about how a failure to accommodate changes in renal salt concentration (osmolarity) could contribute to the development of cysts.  The group toured labs where they learn about how cultured renal cells are used to model PKD and how PKD proteins are analyzed.  They learned that a new gene editing technique has made it much easier to produce cultured cells that lack PKD-related proteins.  They viewed primary cilia on live renal cells using a state of the art microscope.  They learned how the amounts of PKD-related proteins on cilia are quantified to monitor changes in response to treatments.  Dr. Brad Dixon reviewed recent PKD clinical trials.  Dr. Heather Duncan explained how clinical trials are run.

Cincinnati/Dayton PKD Research Lab Tour

Download the lab tour handout!


 

Kroger Tour

The Cincinnati/Dayton Chapter wants to thank our own Beth Klaine, a nurse with a degree in Nutrition, for taking us on a PKD nutritional tour of the Harpers Point Kroger on Tuesday evening, October 21. Beth spent about 1 1⁄2 hours drawing our attention to the sodium, potassium, protein, and sugar content of various foods located through-out the store.

Beth suggested the following web sites, publications and apps if you want to learn more about good PKD nutrition:

Websites:
1. PKD Foundation: www.pkdcure.org
2. National Kidney Foundation: www.kidney.org
3. Astellas Pharmaceuticals: www.transplantexperience.com
4. American Heart Association:www.heart.org/HEARTORG (Look for "Getting Healthy" tab)

Publications: Nutrition Action www.cspinet.org

Apps:
1. Kidney Diet
2. My Fitness Pal

 

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Cincinnati/Dayton Walk for PKD

 

Walk for PKD   

          September 27, 2015

                     Voices of America Park 

                                     Registration is now open!

        To learn more about the Cincinnati/Dayton walk or to donate, click here

                                                Register Now!

 

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Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Basic function of the kidneys

Wednesday, Sept. 16, 12 - 1 p.m. CDT

PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the function of the kidney and why they're so important.

Register


Latest National Webinar

WebinarKidney Stones

Kidney stones can be painful and occur more often in PKD patients than in the general population. Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman will help you understand what kidney stones are, why they happen and what can be done to treat them.

Watch Now


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.