Advocate

It doesn’t take much to be an advocate – just a little time, dedication and passion for seeing a treatment and a cure for PKD become a reality. 

The PKD Foundation is proud of PKD Champions across the country, and we are inspired by their actions. We encourage PKD Champions to communicate routinely with members of Congress and their staff. Developing these important relationships helps the Foundation further a legislative agenda that focuses on legislation and policies to increase federal investments in PKD research, supports PKD patients and families and spread awareness of the disease.  

Advocacy Toolbox

• Find Your Elected Officials
• Communicating with Elected Officials
• Visiting Your Elected Officials (PDF)
• Meeting with Your Elected Officials (PDF)
• Legislative Glossary (PDF)
• United on the Hill
• PKD Prevalence by State (PDF)