PKD Champions, Your Advocacy Can Help Cure PKD!
Last year, more than 80 advocates from 22 states answered the call and traveled to Washington, DC to meet with their members of Congress. They became a strong voice for the more than 600,000 Americans with PKD.
Advocacy is vital to help advance research, lead to the discovery of new treatments, and a cure for PKD. In 2009, federal funding for PKD research reached an all-time high of $42 million at the National Institutes of Health (NIH). This success is due to the efforts of PKD patients, families, and friends, who worked hard to raise awareness of PKD on Capitol Hill with their members of Congress.
Join us this year as we work towards these goals:
- Increase federal funding for PKD research
- Change FDA policy for approving promising treatments and therapies
- Tackle the shortage of kidney donors
- Address inadequate Medicare coverage of immunosuppressive drugs.
Details
United on the Hill 2010
March 1 - 2, 2010
Four Points by Sheraton
Washington, DC
Registration for the conference is free. However, United on the Hill participants must pay their own airfare to and hotel stay in Washington, DC The PKD Foundation does offer a discounted room rate of $150 per night for participants at the Four Points by Sheraton, the conference hotel.
Click here for more details about traveling to Washington, DC.