About Our Website
Following are answers to some commonly-asked questions regarding the PKD website. If you have other questions that are not answered here, feel free to send us an email and we'll do our best to get back to you in a timely manner. Please note: due to our limited staff and the priority given to time-sensitive, research-related projects, email responses may take a few days. Thank you for your patience and understanding.
What is the goal of the PKD Foundation website?
The PKD Foundation was created for the express purpose of raising funds and support of research efforts for Polycystic Kidney Disease. Over time, the Foundation has attempted to stretch their resources to include some information and education about PKD. This web site is one of many tools used to help get basic information to the public, while also maximizing the opportunity to raise awareness and funds for research.The primary purpose of the web site is to serve as a "brochure online" that allows individuals to learn the basics about PKD, the Foundation and its focus on research efforts. It also serves as a resource to find support groups in major cities across the country, as well as related health links on the Internet (though not maintained, operated or endorsed by the PKD Foundation). Medical professionals may also learn about the grant application process and the types of studies that have been funded so they might become involved in the fight to END PKD.
How often is the website updated?
The PKD Foundation website is updated as new information becomes available - sometimes this is once a day, sometimes, once a week. To receive up-to-the-minute PKD information, including updates on clinical trials, sign up for PKD E-News.
What if I have suggestions for the website or can't find something I'm looking for?
Call us at 1-800-PKD-CURE or email us at pkdcure@pkdcure.org. We'll help you find it or take down your suggestions for future revisions to the website. We want our website to reflect the needs of PKD patients, families and medical professionals and welcome your feedback!
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